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Home » Personal Stories » Beth, Deputy Director, Endo Sufferer

Beth, Deputy Director, Endo Sufferer

I am 19 years old and was diagnosed with endometriosis via laparoscopy in July 2019. Looking back, I have had a fair few symptoms of endo ever since starting my period at about age 12, but I thought the things I was experiencing were somewhat normal. In fact, certain aspects were definitely a sign that there was something wrong! From Autumn 2018, things gradually started to worsen quite drastically, and a lot of the next year was spent was spent out of college at home, and going between hospital appointments to try and figure out what was going on and how to make it better. After a few months of countless scans, tests and procedures, I had received the diagnoses of hyper-mobile Ehlers-Danlos Syndrome, Interstitial Cystitis and Chronic Tendinitis as well as Endo. I quickly learned the hard way that there isn’t, unfortunately, a magic solution to make it all go away! There is, of course, many ways of managing chronic pain/chronic illness, however I personally am yet to find something which provides me with substantial relief, but I am hopeful things will eventually improve from the way they have been recently! I am currently awaiting a second laparoscopy as I have suspected endometriosis on my bowel and possibly elsewhere too, so once this has been done I really hope to see an improvement in my symptoms, and at least have a better picture of what is going on. As I’m sure many of the people reading this will sadly know, it can often be a challenge in itself to get people, medical professionals or otherwise, to take pain and other difficulties caused by something like endo seriously. I have been extremely lucky in that while my chronic illness and pain journey has been difficult in its own ways, it didn’t take me too long to find consultants who really listened to me, due to initially seeing the same consultant as a close family member who has already been through a lot of what I am dealing with now. I am so grateful to be a part of this incredible group for so many reasons, and we are here to support you on your journey in any way we can.

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